Tuesday 14 January 2014

Finally our of her cast

After a holiday spent trying to keep her cast dry and sand free we have had our day at the hospital to remove her cast!!!

Now the journey begins to get her back on her feet and walking again. So far she has been happy and relaxed but a bit emotional about trying to use her legs. Her ski was very scaly and dry and she didn't want to see her legs. She wanted them covered up with leggings. 

So good to have her back home with her little legs poking out again!

Again great service by starship and thanks to everyone who has been so supportive to date. 

Next check up in three months.







Monday 30 September 2013

Tomorrow's the day

Should be the last day of the full spica tomorrow and we should be down to broomstick cast. Here's hoping!

Sunday 22 September 2013

Time ticking by

Our last check up went well with the femur still in place and some early indications of improvements in the shape and positioning of the bone and cartillage.

Alex is very confident in her cast and really enjoying transition into toddlerhood.

Like all kids around her age its fascinating watching her speech develop and having fun with words. Were thinking that her speech may be reasonably advanced as a result of her not being able to run around but its only a theory. What we do know is that she has very strong arms and shoulders now!

Our next change of cast is on 1st october at which point she should get a slightly less restrictive cast.

Recent pics below from the last few weeks.

Thursday 22 August 2013

First cast change

Alex is back at home after having her cast changed. She's time and went through the procedure very bravely and pretty much wanted to leave the hospital as soon as the anaesthetic had worn off. The new cast is slightly higher and tighter which annoys her a bit but she's pretty much used to it already.

She had a general anaesthetic and dye injected into her hip so they can see progress. He said that the was still in the right place so thats excellent news.

Now just need to wait for four weeks to see how the cartilage is growing back around the joint and have another scan.

Wednesday 7 August 2013

Two weeks until our first cast change

The weeks are now ticking by which is great and we have now been joined by our au pair Karen from Netherlands who moved in Sunday to help out for a few months.

Alex is still pretty happy and loving her outings. Weve managed to keep her cast clean and dry. She does occassionaly still pat her legs and say bet-ter which is a bit heartbreaking but we can only wait.

Sometimes I wonder what shed be up to if she were running around like other kids but mainly I just enjoy being with her and having fun, tickling her, playing games, and dancing like we always have.

She wasn't so sure about the sharks though.

In two weeks she will have her cast changed. This requires a general but no surgery so should only be a day visit.

Monday 29 July 2013

First check-up post op

We had our check-up today with Mr Graydon and the feedback is that Alex's femur is still in the correct location post-surgery which is awesome.

Alex was very good in the hospital and didn't seem to mind revisiting her old haunts. Especially not where getting a fluffy was concerned. Next step is in four weeks where her first cast will be replaced by another Spica case for a further six weeks. So only 10 week to go until she's out of the full Spica!

She will however have to be in a broomstick cast for a further six weeks after she'd out of the Spica, followed by a further possible six weeks in another broomstick cast. A broomstick cast will allow more movement - it's just the legs connected by a broomstick as per these ones - hardly built for running about but a distinct improvement on the Spica she's in today.

Anyway all-in-all a great day and we're hoping that her recovery continues in the same way.

Also the doctor checked Saksia's hips today - and they are fine but we will also get a CT of her to be sure.


Helping out in the garden over the weekend